Hi it's is me, Aislinn.  It has been awhile since you last heard from me.  I have so much to share with you.  Sit back and relax because I have milestones to share with you.
 
It seems like forever ago I was trapped inside myself due to illness and rotten nursing care.  Yep, I said it...rotten nursing care.  It was so difficult for me to express myself and even engage in the simplest tasks.  My mom put her energy into finding the best agency and nursing to help care for me. Now I am moving my own mountains.  
 
 
I was well enough to attended my big sister's school play titled 101 Dalmations, and her Continuation Ceremony.   Way to go Alexis!
 

 
 
My scoliosis has been very painful.  Muscle spasms during all hours of the day. So painful I am up all night.  Grrrr!  I really don't want to have surgery to put icky rods in my spine.  It was a relief when my dad discovered a chiropractor that makes house calls. How cool is that?! Dr. V. uses an Activator which feels like a highspeed poke.  To me it looks like a miniture pogo stick...haha! The treatment will take months...so whatever...I am just pleased to say I am pooping without the aide of Milk of Magnesium or suppositories!  A small victory!
 
I have been working really hard on speaking for myself.  Checkout this video that proves it.  Mom cries for joy each time she watches it.  


 
I have gone to every one of my sister's softball games this season.  I think I am a good luck charm. They are undefeated so far this season.  Go Eagles!  I love this Eagles' team player!
 
 
I saved the best for last.  I have been out of the hosptial for 366 days!  I have found my inner peace. I am well right now.  I am sharing a little video that expresses my Zen!  What is your Zen?  
 
Michelle D. Voss-Shelley
(Mom to nine year old Aislinn with a GRIN1 mutation)
(butterflyicebaby@gmail.com)