Miracles for Mito: In the spirit of strength

Miracles for Mito’s mission is to ensure that no individual or family has to be alone while trying to understand a complicated mitochondrial diagnosis.

Our mission is to improve the resources and information available to individuals and families that are coping with Mitochondrial Disease in the Rocky Mountain Region.  We are focused on awareness, education, support and advocacy for children and adults.

We will create partnerships worldwide to help understand and share the most recent research, patient therapies and resources available in the Rocky Mountain Region.

Events

Fondue & Festivities, Silent Auction Dinner
Sep 18, 2014 - Melting Pot VIEW FONDUE & FESTIVITIES, SILENT AUCTION DINNER DETAILS
Mito Awareness Day
Sep 20, 2014 - Anchor Center for Blind Children VIEW MITO AWARENESS DAY DETAILS
Mito Symposium
Dec 3, 2014 - Children's Hospital Colorado VIEW MITO SYMPOSIUM DETAILS
Whimsy Sip & Paint
Nov 6, 2014 - Whimsy Sip & Paint VIEW WHIMSY SIP & PAINT DETAILS

Mito 1:1

What is a mitochondrial disease?

Mitochondrial diseases result from failures of the mitochondria, specialized compartments present in every cell of the body except red blood cells. Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. When they fail, less and less energy is generated within the cell. Cell injury and even cell death follow. If this process is repeated throughout the body, whole systems begin to fail, and the life of the person in whom this is happening is severely compromised. The disease primarily affects children, but adult onset is becoming more and more common.

Diseases of the mitochondria appear to cause the most damage to cells of the brain, heart, liver, skeletal muscles, kidney and the endocrine and respiratory systems.

Depending on which cells are affected, symptoms may include loss of motor control, muscle weakness and pain, gastrointestinal disorders and swallowing difficulties, poor growth, cardiac disease, liver disease, diabetes, respiratory complications, seizures, visual/hearing problems, lactic acidosis, developmental delays and susceptibility to infection.

There is today no cure, and for a person living with Mitochondrial Disease, life is compromised, changed or even ended. Every 15 minutes, a child is born who will develop mitochondrial disease by age 10. We now know that this group of diseases is approaching the frequency of childhood cancers. Miracles for Mito is committed to raise money for national mitochondrial disease research while providing local support, awareness and education to our community.

Links to Useful Resources

Moments with Jacob

A moving blog page created by Maria Hopfgarten, this site is a tribute to her son, Jacob Benjamin Hallberg, an eight-year old boy with Mitochondrial Disease.

VIEW SITE
Samantha’s Mom

Heather Schichtel's blog site about her life experiences with her daughter Samantha, a beautiful girl who passed away from Mitochondrial Disease. This site also contains many useful and relevant links to Mitochondrial resources.

VIEW SITE
United Mitochondrial Disease Foundation (UMDF)

The Web site for UMD contains vast amounts of information and resources related to Mitochondrial Disease.

VIEW SITE
The Children’s Hospital

The Web site for The Children's Hospital, one of the top 10 children's hospitals in the nation and a place parents across the Rocky Mountain region have come to trust.

VIEW SITE
Mitoaction

The Mitoaction website contains vast amounts of information and resources related to Mitochondrial Disease.

VIEW SITE

Miracles for Mito’s Family Grant Program

Miracles for Mito is granting Mito Families and Individuals Financial Grants supporting the needs of Mito Patients in the Rocky Mountain Region. Miracles for Mito wants to make a difference in the day-to-day lives of our Mitochondrial families and patients.

Application process

All applications will be reviewed on a quarterly basis by Miracles for Mito’s Board. The Board will grant a minimum of one grant request per quarter. The amount of each grant is at the discretion of the Board. We require that receipts are submitted for the grant amount received no later than 60 days after the grant has been honored. If no receipts are submitted to Miracles for Mito, that individual will not qualify for future grants.

Qualifications

To qualify for a grant from Miracles for Mito you need to have a confirmed or probable Mitochondrial Disease diagnosis. You will need to submit receipts for your expenses used towards the grant amount. Board members are not eligible for grants. We can only approve one grant per family per year.

Purpose of grant

Your grant can be used for a variety of resources that benefits a Mitochondrial Patient. Examples of possible resources the grant can be used for are: supplements, equipment, home modifications, respite, cleaning service etc. This is not an all-inclusive list. We don’t accept grants for requests that are paid by Private insurance and Medicaid.

Please submit your completed application together with a Referral from a Medical Professional.